Friday, January 16, 2015

An Update and a Promise

Wow, I really need to be better at this whole blogging thing! My apologies for taking so long to post. I figured I would do a quick update on Colin, but I am also working on a post that explains what happened between the 2nd week of January and the 2nd week of February last year, since I sort of went silent.  

Colin has been doing well, he is on room air all day, using the Passy Muir Valve (speaking valve) and minimal oxygen at night.  We have been having some issues with what is called Pseudomonas, which is an infection in the trachea and is very common among people with trachs. We do a round of antibiotics, it goes away for a short time and then it comes back. The docs have decided to do a 28 days on/28 days off of the antibiotics during the winter since we're having such an issue with it.  It just causes a lot of extra secretions and some alarms at night.  

Colin had his one-year check up on January 9th and the doctor was very pleased with his growth.  He is on the charts for weight, length, and, of course, head circumference.  He had to get 5 shots, which was not fun at all, poor babe. 

He still isn't crawling or pulling himself up, his PT, Abbi, says that he is just being lazy and that he CAN do it, he just chooses NOT to do it.  Stinker. The same with eating, he is making huge strides with his oral feeds, but there are days he just chooses not to eat by mouth.  He is actually starting to eat almost a third of a container of baby food, and also enjoys yogurt.  He has six teeth, two on the bottom and four on top.  He is starting to look so much more like a little boy and not a baby, which makes mama a little sad.

That same day we had BPD (Bronchopulmonary Dysplasia) Clinic, where they basically check Colin out, discuss nutrition and make changes to his diet, and we meet with a Feeding Specialist.  They decided to switch Colin from his Enfamil Enfacare formula to Pediasure, which our insurance will cover and our equipment company will deliver, saving us a lot of money, praise the Lord! (Side note: we also got approved for BCMH, which is a secondary insurance that will help us cover the costs of his medical bills and the co-pays for his medication, which are hundreds of dollars) The feeding specialist was happy with his progress and gave us some tips on how to re-introduce liquids, which I think will be a very difficult task.

He has said his first word, which was "mama."  Daddy wasn't very happy, but like I explained to him, I'm home with him all day, do you really think I sit here and say, "dada, dada"?  Nope! He has also learned how to manipulate me into rocking him to sleep at night, which I really don't mind.  His favorite toys are not toys at all, but his tubes and cords and, of course, my phone.  He also loves watching Octonauts! 

We feel so blessed to have Colin as our son and he has brought endless amounts of joy into our lives. He is so much fun and we look forward to what God has planned for us this coming year! 

I promise to be better at updating the blog, I know some of you love seeing pictures and getting updates on Colin.  Thanks again for all the love, support, and prayers, we have amazing friends and family.  Love to you all!!

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